Please Help me figure out what doc I need to take my son to, he has rectal bleeding, vomiting & crying spells?



What kind of Doctor do I need to try to find to see my son? A Pedartic Genetic Doctor an Pedatric Immunologist Doctor or some other type of doctor? Here is a good bit of info on him and the things going on with my little guy, so someone can maybe point me in the right direction. My son is 3 months old and has had rectal bleeding for over 2 months now and vomits a lot! His ped. referred him to a Ped. Gasternologist. The ped gastor. says he believes he is highly allergic to milk protiens. He had his formula switched a total of 6 times and is now on Neocate. As well as Beechnut cereal with every feeding, the Ped. Gastern. told me to stick 2 tsp in for every ounce, however I felt that was way to much cereal, for a 3 month old to be on. He is also on 3 acid reflux medications as well. The bleeding and vomiting subsided for about a week, but now it is all back again and now he is EXEREMLY fussy! I cant seem to do anything to calm him down. He falls asleep crying and wakes up crying! He has had a rough start at life, he was a NICU baby, need to be on a ventalor, cpap, nose cannale, feeding tube, had pnumonia 2x’s well in the nicu and had bronctics approx 2 wks ago. He had lung diease as well when he was born and was not able to keep his own oxygen level, they did blood gasses on him several times a day when he was in the nicu, he had yellow jaundice & had to have phototherapy as well when in the nicu. He also need a blood trasfusion when he was a week old, he had surgery for Pyloric stenonis when he was a month old. Nothing seems to be getting better for him. The doctors will try something new with him and the sythpoms subside for a week or two and are right back again. I dont know what else to do or what other doctors to have him checked by! No doctor has done blood work or any test on him. I am getting fed up with the docs. I hate seeing my baby in pain. And feel helpless when I cant do anything to make him better! I thought he may have Necrotizing Enterocolitis but I would have thought they would have tested him for that in the nicu. He has just about every sythpom of it except the budgling stomach. I mentioned it to the gastren. doc and he didnt want to hear anything about it! He is thinking it is the milk allergy as well as acid reflux, well if it is that why isnt the medication working and why is he still having all the samethings still going on! Why do they go away for a few days when they try something new for him then come back. I feel like they are using him as a guiene pig. I dont know where else to turn!
Now today he woke up crying at 615am, his crib, blanket and pjs were soaked with throw up. I picked him up out of the crib and he threw up more all over my shoulder and down my back! His last feeding was at 407am and he only drank 4oz. He had to take his medication when he got up do I gave him that at 630am. I of course cleaned him all up, changed his diaper cause he had popped! The poop had little spots of blood through, today it wasnt bright red it was darker. And the poop was a VERY dark color, hard to tell if it was DARK green or black, I used a permant black mark and made a little mark on the diaper and compared the color to the poop and it seemed to look quite the same!
He hasnt had an fevers, except a small one about a month ago. That went away in a few hours. And he is gaining weight, atleast when we were at the doctors last he was! Thats why I think the doctors dont feel this is anything to be concerned about! But, I know my baby and I feel there is something more going on with him. We are going for a second opion for a Ped. Gastnerologist, but cant get in til Feb. 2nd, however he is on a waiting list and if anyone cancels they said they will get him in sooner!
PLease help me! And him!!!
He had an ultrasound, upper gi and an x-ray, they said, they saw acid reflux but everything else looked ok!


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3 comments a "Please Help me figure out what doc I need to take my son to, he has rectal bleeding, vomiting & crying spells?"

It sounds by the way you describe his bowel movements with blood, then getting darker, almost black, indicates stomach or at least higher in the G.I. tract bleeding. Can you get him to an emergency room? It may not be critical, but at least have him checked for serious blood loss. God bless your child and you, hang on.

Neocate is probably the best formula for your child to be on at this time. Have you called or e-mailed your GI to let them know about the blood and his symptoms coming back?
What type of BeechNut cereal is he on? Rice, I hope. Do not do any other grain unless advised by your GI.
If your child had a necrotic gut, you would be back in the ICU, he would have a very, very high fever , and would not be gaining weight.

Have you checked his medication ingredients for anything that he would be allergic/ intolerant of? That would be my first thing to check. I have celiac and am lactose intolerant, and it is always a struggle to find medications that I can consume, mostly due to lactose.
The dark poop and black stuff indicated old blood (upper GI) and the fresh blood indicates lower GI stuff usually. I would make sure that you let your doc know that he is having blood in his poop again, asap.

I really feel your pain about waiting times to get in to see a GI specialist. It is like that all over. It seems like you have to come in and fall over to get a timely appt. Your best bet is to keep working and working with your Ped. and Ped. GI that you have for now until you get that other call. You can go to the office and weigh your baby weekly or every other week without an appt. usually. The good thing about that is if he starts to lose weight then you will know about it asap…
Good luck, and check his medication ingredients for any allergen such as milk, gluten, etc. If you need help finding the ingredients to his meds, you can call the producer of the meds directly and find out that way!
Blessings! “Nama

You definately need to see a pediatric gastroenterologist. But if you do not like the one you are seeing, try another in your area. Below is a site you can use to find a Ped. Gastro.

I understand your frustration with doctors. But you are bound to get more help there than on a forum like this. But keep trying and you will find a solution somewhere.

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